Established in 1971, the Foundation Fighting Blindness is the world’s leading private funding source for retinal degenerative disease research. The foundation has raised more than $816 million toward its mission of accelerating research for preventing, treating, and curing blindness caused by the entire spectrum of blinding retinal diseases, including retinitis pigmentosa, macular degeneration, and Usher syndrome.
A 2021 grant from the Cultures of Resistance Network supported Lulie’s Next Chapter for Light and Vision. The chapter program is the backbone of the foundation’s mission, providing resources, education, and revenue in the fight against the entire spectrum of blinding retinal diseases. Chapters not only provide the needed support for those in the community but also hold seminars and
meetings which offer research information and low vision resources, as well as provide outreach to retinal practices and eye care professionals. Lulie’s Next Chapter includes transformational initiatives such as Lulie’s Leadership Training, which brings together the best of chapter leadership to participate in leadership training and team development seminars, and Lulie’s Light Award, which annually recognizes the work and impact of leadership from the foundation’s Chapter network around the nation.